Thursday 12/13/18

Meghan has been working on her talking a little bit. Having the speaking valve on feels different to talk but she’s trying. She stood again twice on the floor with support from the nurse. Each time was for about 15 seconds long. Her doctor is going to check her abdomen on Monday to see if she will have her next skin graft surgery before moving to rehab. 

Wednesday 12/12/18

Labs were exactly the same from Monday. Meghan will be standing today at 45 & 50 degrees. Meghan has been asking to walk, she just wants to get moving. Finally in 3 months Meghan stood on her own feet off the bed completely upright. She had her nurse supporting her and helping but she did it. She had the catheter from her lung area removed also. So busy day for Meghan. She had a lot of PT and standing on her feet for 15 seconds each time. 

Tuesday 12/11/18

Meghan got some sleep last night. Doctors changed her one medication. The one she was on was very strong and doctors didn’t think she needed it anymore. Labs will still be every 48 hours. X-ray today of her lungs looked better. Hopefully the catheter will be removed tomorrow. Speech is scheduled to see her twice a week. Next step for the trach is hopefully removing it. Doctors want her secretions to be less before that happens. Hopefully next step is to move her to the rehabilitation hospital. That can happen if everything continues to go in the right direction. 

Monday 12/10/18

Meghan’s labs were taken and white count did go down a little bit to 31.5. They will be doing a swallow test today. She failed the swallow test so only swabs of liquid for now. The catheter in her lung area has only had 40cc’s come out of that for few days. Doctors are hopeful that can get removed soon. She did some PT today, sitting on the edge of her bed but no standing. 

Sunday 12/9/18

Hunter got to visit with Meghan today. He got to sit next to her and hold mommy’s hand. Another X-ray was done and new fluid was found in her lung. They are going to get her sitting in the chair and keep up with PT in the hope that it works itself out. Although where the new fluid was found it could possibly become pneumonia. They are going to treat her that way to try and prevent it. Hopefully she will be able to rest tonight. 

Saturday 12/8/18

Labs were taken this morning and again white blood cell count went up to 36. Doctors are telling Rob that they think it is from her aspirating. Platelets have gone up to 989 & hemo is at 8.3. They did another chest X-ray and the fluid is decreasing. When they start the feeding tube it will be in the J tube. This kind of tube by passes the stomach and goes straight into her intestines. 

Friday 12/7/18

CT showed that she was aspirating, meaning when she was swallowing the water and Gatorade a small amount was going into her lungs. So for now she is not allowed to drink anything. Doctors explained to Rob that the fluid is minimal and will work it self out. As far has her abdomen goes her skin graft is looking good. They are going to let that continue to heal before any other grafts are placed. Oxygen levels have been good today. They won’t put another catheter in unless any fluid becomes an issue for Meghan’s breathing, which it isn’t now. Doctors are telling us pneumonia isn’t an issue right now because the fluid isn’t in that layer of lung. The catheter in the area near the lungs is still in for now and draining a minimal amount. If Meghan has no other issues, doctors are talking about moving her to rehab maybe by the end of next week. Nothing is set in stone they are just saying it’s possible if no other issues arise. A Psychologist came by today to see Meghan and is putting her on a medication just to help with some anxiety she is having & hopefully let her get some rest. And for the first time in 3 months she spoke. She had the speaking value on the trach and she said to Rob “ I can talk”.