Thursday 12/6/18

Meghan was waking up a lot last night and getting more rest during the day. Her white count went up a little today to 26. They are going to do a CT to make sure there isn’t a build up of fluid anywhere in her abdomen. Teagan went to visit Meghan today. Around 9pm Meghan’s oxygen levels were going back and forth between 88-93, should be 97-100. Respiratory is going to give her a treatment and that should work. She is going to CT finally around 11pm. Her oxygen level went back up and is doing ok. We won’t have results until the morning from the CT. 

Wednesday 12/5/18

The catheter she has in around her lungs is still draining fluid but very minimal. OT will be with her today and she has been working on exercises herself too. She stood for 15 minutes at 60 degrees. Not much else going on for Meghan today, but Princess Teagan is 3 months old. 

Tuesday 12/4/18

Meghan had a rough night, not getting comfortable and coughing up secretions a lot of the night. She was given more Tylenol today, she still has a small fever. Major thing for today her doctors decided to drain the fluid by her lungs. Doctors explained to Rob that the fluid is no longer in her lungs but the area around them. The fluid is causing pressure on her lungs which is making it harder for Meghan to breath. Lung procedure is done right in her room with a local anesthetic and place a catheter into the area. For now her trach will stay at a 6. The secretions she has still are so thick and doctors do not want to cause any issues with downsizing. They have also changed out one of her bacterial medications, due to the length of time she was on the previous one. Procedure was done for her fluid near her lungs around 1:30pm. They told Rob it drained out 1400 CCs of fluid.

Monday 12/3/18

Today Meghan’s nurse have set up a schedule for her so she has some routine during her days. IR will take her today, she is on their schedule just don’t have a time yet. Doctors have stopped the Delauded pain button and now she only has the fentanyl patch. If she needs anything else to help with pain they will administer that as needed. She is working on her stretches daily and hopefully continually getting stronger. IR replaced the drain around 6pm.

Sunday 12/2/18

Meghan isn’t sleeping the greatest lately. She has a small fever that goes with the MRSA so she is getting Tylenol for that. They did another X-ray just to double check placement of the drain and after pulling the film underneath her, a stitch was pulled out and drain came out. IR will come and fix this at some point today. Meghan’s plan for the day is to be in the chair a lot and she is more comfortable sitting up. IR was unable to get to Meghan today. The site where the drain was isn’t leaking and she does have the drain on top of the abdomen. Meghan’s vitals are still looking good and spending most of her time in her chair. 

Saturday 12/1/18

Meghan was up most of the night, still getting up some secretions. This afternoon they did decide to give Meghan a unit of blood not because she is bleeding but from being on TPN (iv nutrition). The blood will help with some proteins for Meghan. She still is getting dextrose in her bowels to wake them up. Doctors don’t plan on changing her trach at this time, they don’t want to downsize too quickly. The cultures they took yesterday came back positive for MRSA. She is being put on a new medication for that today. The drain is right where they took the culture of puss. So the nurses told Rob that with the new medication and drain right in that area it shouldn’t become a bigger issue. 

Friday 11/30/18

Meghan didn’t get much sleep overnight but resting early this morning. Her labs were taken this morning and white blood cell count went up just a little bit. Doctors aren’t concerned at this time. PT and OT came to work with her for a little and now she is sitting in her chair. Pain management came to see her today and switch her to the fentanyl patch instead of dilaudid. They did a new culture today of some stuff that was coming out of her drains. Same as the other cultures they check it daily for any new growth or any new infections. Meghan did 8 hours in her chair. Also she was able to cough up some fluid and secretions, so hopefully some of that was the fluid in her lungs.